Draft social care data standards: feedback block one
This page contains the first block of draft social care data standards, which are now open for feedback.
We've organised the standards into use cases, which reflect different situations where information needs to be recorded and shared. Each use case contains a number of proposed data items, together with suggested names and definitions.
We'd like you to review the draft standards and tell us whether they're clear, reflect practice and contain the information needed to support the sharing of information across social care.
This first block includes:
- front door – information about referrals to social care, such as a person's initial or subsequent contact with the front door to social care services
- hospital discharge – information needed to support a person’s safe and timely discharge from hospital into an appropriate care setting
- reablement – information needed to identify people who could benefit from reablement and support them to access a short-term reablement service
- case closure - information that needs to be recorded when a person’s social care record is formally closed.
Open feedback form
Use our online form to record your feedback as you review the draft data standards below.
You can also download a copy of the form at the bottom of this page if you'd prefer to work offline.
Front door
These tables set out the proposed data items, names and definitions for the front door use case. The use case includes information about referrals to social care, such as a person's initial or subsequent contact with social care services.
Each table below sets out:
- ID - the unique code we've given each data item. You can use this code when providing feedback so we know which data item you're referring to
- Name - the proposed name of the data item (such as given name, family name or date of birth)
- Definition - the proposed definition of the data item
- Values - where relevant, the options that can be used for the data item (for example, 'yes' or 'no', or a list of local authorities). For some data items, we've linked to an external source of options rather than listing all available values.
We want your feedback on the proposed data items, their names and definitions.
All of the use cases we're asking for your feedback on will also include information about the person, their relations, carers and referrers. This includes things like name, date of birth, gender and ethnicity.
Because of this, we've collected all of these data items together in their own 'demographics' use case, which we'll ask for feedback on as part of a later block. We've listed the demographics data items relevant to this use case in the dropdown below for reference.
View list of demographic data items -
Subject of referral
- NHS number
- Unique pupil number
- Title
- Family name
- Given name
- Known as
- Date of birth
- Gender
- Ethnicity
- Primary language
- Address
- Postcode
- Contact telephone
- Communication needs
- Interpreter required
Personal relationships
- Family name
- Given name
- Known as
- Date of birth
- Relationship type
- Address
- Postcode
- Contact telephone
- Contact email
- Parental responsibility
Referrer
- Family name
- Given name
- Referrer ID
- Referrer organisation
- Referrer telephone
- Referrer email
Referral details
| ID | Name | Definition | Values (where relevant to the data item) |
|---|---|---|---|
| UC001-DE001 | Anonymity required | Whether the referrer wishes to remain anonymous. | |
| UC001-DE002 | Referral date | Date and time referral or contact was made (this is the date that starts any statutory count). | |
| UC001-DE003 | Date received | Date the local authority opens the referral addition. The date received is generated by the system when it reaches the inbox. | |
| UC001-DE004 | Referral source category | Category of referral source. | Self, Relative, Friend or neighbour, Early intervention or prevention service (step-up), Health, Education, Housing, Police, Probation, Third sector organisation, Local authority, Independent hospital, Ambulance service, Care regulator, Provider, Advocate, Other, Internal (social worker or another team) |
| UC001-DE005 | Reason for contact | Primary reason for the referral or contact. | |
| UC001-DE006 | Referrer expectations | Expected outcome or action as a result of making a contact. | |
| UC001-DE007 | Consent | Has the person consented to information sharing, subject to safeguarding or legal exemptions? | |
| UC001-DE008 | Current social care status | Any existing social care status to be included as part of transferred cases, for example Deprivation of Liberty Safeguards, Child Protection or Child Looked After. | |
| UC001-DE009 | Additional statuses | Examples of information to include: registered disabilities, education details, housing status, general practitioner details, council tax information available in the relevant systems, faith or religion, benefits and allowances. |
Part 2: Information captured by the local authority as part of processing
Outcome
| ID | Name | Definition | Values (where relevant to the data item) |
|---|---|---|---|
| UC001-DE010 | Contact outcome | Outcome of the initial contact. | No further action, Information and advice only, Signposted to universal services, Proportionate assessment initiated, Full assessment initiated, Section 47 enquiry, Team Around the Family or early help referral |
| UC001-DE011 | No further action reason | Reason no further action was taken. | Not eligible for care and support, Universal or community services sufficient, Person declined service, Matter resolved before assessment, Duplicate contact, Other |
| UC001-DE012 | Onward referral destination | Organisation or team to which the person was signposted or referred. | |
| UC001-DE013 | Safeguarding flag | Whether there is an open or recent safeguarding concern. | |
| UC001-DE014 | Priority | Priority assigned to the contact. | Urgent, Standard, Low |
Worker details
| ID | Name | Definition | Values (where relevant to the data item) |
|---|---|---|---|
| UC001-DE015 | Worker name | Name of the professional handling the case. | |
| UC001-DE018 | Team name | Name of the team to which the worker belongs. | |
| UC001-DE019 | Authoriser name | Name of person authorising the outcome decision. | |
| UC001-DE020 | Authoriser team | Name of the team to which the authoriser belongs. |
Ready to tell us what you think?
Use our online feedback form to share your thoughts about the draft data standards.
Hospital discharge
This table sets out the proposed data items, names and definitions for the hospital discharge use case. The use case includes information needed to support a person’s safe and timely discharge from hospital into an appropriate care setting.
The table below sets out:
- ID - the unique code we've given each data item. You can use this code when providing feedback so we know which data item you're referring to
- Name - the proposed name of the data item (such as given name, family name or date of birth)
- Definition - the proposed definition of the data item
- Values - where relevant, the options that can be used for the data item (for example, 'yes' or 'no', or a list of local authorities). For some data items, we've linked to an external source of options rather than listing all available values.
We want your feedback on the proposed data items, their names and definitions.
All of the use cases we're asking for your feedback on will also include information about the person, their relations, carers and referrers. This includes things like name, date of birth, gender and ethnicity.
Because of this, we've collected all of these data items together in their own 'demographics' use case, which we'll ask for feedback on as part of a later block. We've listed the demographics data items relevant to this use case in the dropdown below for reference.
View list of demographic data items -
- NHS number
- Family name
- Given name
- Date of birth
- Gender
- Address
- Ethnicity
- Primary language
- Contact telephone
| ID | Name | Definition | Values (where relevant to the data item) |
|---|---|---|---|
| UC002-DE002 | Allergy | Any known allergy relevant to care planning. | Source: SNOMED Allergy Codes |
| UC002-DE003 | Allergy severity | Severity of the recorded allergy. | Mild, Moderate, Severe, Life-threatening |
| UC002-DE004 | Adverse reaction | Any known intolerance or adverse reaction relevant to care planning. | |
| UC002-DE005 | Medication name | Name of each current prescribed or other medication. | Source: NHS Dictionary of Medicines and Devices (dm+d) |
| UC002-DE006 | Medication dose | Dose, frequency and duration of each medication. | |
| UC002-DE007 | Medication route | Route of administration. | Oral, Topical, Intravenous, Intramuscular, Subcutaneous, Inhaled, Transdermal, Rectal, Sublingual, Other |
| UC002-DE008 | Medical device | Medical device in use relevant to ongoing care. | |
| UC002-DE009 | Substance use | Any known substance use or dependencies, recreational or otherwise. | Source: Digital Health and Care Wales Substance Misuse Drug Names and Codes (version 1.0) |
| UC002-DE010 | Alcohol use | Any known alcohol use or dependency. | |
| UC002-DE011 | Primary diagnosis admission | Primary diagnosis giving rise to admission. | Source: International statistical classification of diseases and related health problems ICD10 |
| UC002-DE012 | Functional status discharge | Functional status on discharge. | Source: SNOMED Codes |
| UC002-DE013 | Reason for delay | Barriers to discharge from hospital. | |
| UC002-DE014 | Relevant past medical conditions | Past medical conditions relevant to ongoing care planning. | Source: International statistical classification of diseases and related health problems ICD10 |
| UC002-DE015 | Secondary diagnoses | Other relevant diagnoses or comorbidities. | Source: International statistical classification of diseases and related health problems ICD10 |
| UC002-DE016 | Do not attempt cardiopulmonary resuscitation (DNACPR) | Whether there is an active do not attempt cardiopulmonary resuscitation (DNACPR). | For cardiopulmonary resuscitation (finding), Not for cardiopulmonary resuscitation (finding) |
| UC002-DE017 | Mental capacity status | Whether the person has been assessed as having mental capacity under the Mental Capacity Act 2005. | Has mental capacity, Lacks mental capacity, Not yet assessed |
| UC002-DE018 | Best interests meeting completed | Whether a best interest meeting has been completed. | Yes, No, Unknown |
| UC002-DE019 | Lasting power of attorney in place | Whether lasting power of attorney is in place. | Yes, No, Unknown |
| UC002-DE020 | Mental Health Act Section 117 status | Whether the person has Section 117 status. | Yes, No, Unknown |
| UC002-DE021 | Deprivation of Liberty Safeguards status | Whether a Deprivation of Liberty Safeguards authorisation is in place or being considered. | No authorisation in place, Standard authorisation in place, Urgent authorisation in place, Application pending, Court of Protection order in place |
| UC002-DE022 | Safeguarding status | Whether there are current or recent safeguarding concerns. | No concerns, Active concerns, Recent concerns resolved |
| UC002-DE023 | Child protection plan in place | Whether the child is on a current child protection plan or on the child protection register. | Yes, No |
| UC002-DE024 | Child legal status | The legal status of a child. | Interim care order (C1), Full care order (C2), Placement order granted (E1), Accommodated under agreed series of short-term breaks (V1), Single period of accommodation under section 76 of the 2014 Act (V2), Under police protection and in local authority accommodation (L1), Emergency protection order (L2), Under child assessment order and local authority accommodation (L3), Remanded to local authority accommodation or to youth detention accommodation (J1), Detained in LA accommodation under PACE (J2), Wardship granted in High Court and child in LA accommodation (W1) |
| UC002-DE025 | Responsible local authority | Responsible local authority. | Blaenau Gwent, Bridgend, Caerphilly, Cardiff, Carmarthenshire, Ceredigion, Conwy, Denbighshire, Flintshire, Gwynedd, Isle of Anglesey, Merthyr Tydfil, Monmouthshire, Neath Port Talbot, Newport, Pembrokeshire, Powys, Rhondda Cynon Taf, Swansea, Torfaen, Vale of Glamorgan, Wrexham |
| UC002-DE026 | Safeguarding details | Brief details of safeguarding concerns. | |
| UC002-DE027 | Hospital referrer | Name, role and contact details of the referring professional. | |
| UC002-DE028 | Discharge coordinator | Name and contact details of the hospital discharge coordinator. | |
| UC002-DE029 | Community occupational therapist or physiotherapist | Name and contact details of community occupational therapist or physiotherapist, or other. | |
| UC002-DE030 | Primary carer | Name and contact details of the primary unpaid carer. | |
| UC002-DE031 | Next of kin | Name and contact details of next of kin. | |
| UC002-DE032 | Referral date | Date and time of the referral. | |
| UC002-DE033 | Referral reason | Reason for the referral. | |
| UC002-DE034 | Hospital | Name of the hospital making the referral. | Source: NHS Hospital Codes |
| UC002-DE035 | Ward name | Name of the ward. | |
| UC002-DE036 | Admission date | Date the person was admitted to hospital. | |
| UC002-DE037 | Planned discharge date | Planned date of discharge from hospital. | |
| UC002-DE038 | Actual discharge date | Actual date of discharge from hospital. | |
| UC002-DE039 | Discharge destination type | Location type to which the person will be discharged. | Own home, Care home - residential, Care home - nursing, Intermediate care facility, Another hospital, Hospice, Supported living, Sheltered housing, Other |
| UC002-DE040 | Discharge destination address | The address which the person will be discharged to. | |
| UC002-DE041 | Discharge to assess pathway | Discharge to assess pathway classification. | Pathway 0 - simple discharge, no ongoing support, Pathway 1 - home with up to six weeks funded support, Pathway 2 - bed-based rehabilitation or short-term care, Pathway 3 - complex ongoing 24-hour care |
| UC002-DE042 | Discharge conditions | Conditions that must be met before discharge. | |
| UC002-DE043 | Procedures undertaken | Procedures during admission relevant to ongoing care. | Source: SNOMED Procedure Codes |
| UC002-DE044 | Clinical summary | Narrative summary of admission, clinical findings and treatment. | |
| UC002-DE045 | Treatments and interventions | Treatments and interventions provided or planned. | |
| UC002-DE046 | Living situation - lives alone or with others | Whether person lives alone, with family or others. | Lives alone, Lives with spouse/partner, Lives with family, Lives with others, Other |
| UC002-DE047 | Living situation - has pets | Whether the person has a pet(s)? What are the arrangements? | |
| UC002-DE048 | Household composition | Details of who lives with the person, including any dependants or caring responsibilities. | |
| UC002-DE049 | Housing conditions - accessibility | Details of any housing accessibility issues or adaptations in place. | |
| UC002-DE050 | Housing conditions - accommodation issues | Details of any house issues that are not related to accessibility, for example damp. | |
| UC002-DE051 | Unpaid care arrangements | Details of people who support you. | |
| UC002-DE052 | Primary support reason | Primary support reason using the adult social care core record code set. | Physical support – personal care, Physical support – other, Sensory support – visual, Sensory support – hearing, Sensory support – dual, Support with memory and cognition, Learning disability support, Mental health support, Social support, Carer support – Adult social care core record primary support reason codes |
| UC002-DE053 | Existing care package | Details of any package of care the person was receiving before admission to hospital. | |
| UC002-DE054 | Primary healthcare need | Is it a primary healthcare need? | |
| UC002-DE055 | NHS continuing healthcare required | Whether NHS continuing health care eligibility has been considered or is in progress. | Not considered, Under consideration, Assessment ongoing, Eligible, Not eligible, Fast-track eligibility |
| UC002-DE056 | NHS continuing healthcare multidisciplinary team meeting | Date of multi-disciplinary team meeting. | |
| UC002-DE057 | NHS continuing healthcare decision support tool date | Date of decision support tool. | |
| UC002-DE058 | NHS continuing healthcare disputed | Whether there is an ongoing dispute. | No dispute (CHCD01), Person or family disputes CHC eligibility decision (CHCD02), Dispute between agencies (health board and local authority) (CHCD03), Independent review requested (CHCD04), Dispute resolved (CHCD05) |
Ready to tell us what you think?
Use our online feedback form to share your thoughts about the draft data standards.
Reablement
This table sets out the proposed data items, names and definitions for the reablement use case. The use case includes information needed to identify people who could benefit from reablement and support them to access a short-term reablement service.
The table below sets out:
- ID - the unique code we've given each data item. You can use this code when providing feedback so we know which data item you're referring to
- Name - the proposed name of the data item (such as given name, family name or date of birth)
- Definition - the proposed definition of the data item
- Values - where relevant, the options that can be used for the data item (for example, 'yes' or 'no', or a list of local authorities). For some data items, we've linked to an external source of options rather than listing all available values.
We want your feedback on the proposed data items, their names and definitions.
All of the use cases we're asking for your feedback on will also include information about the person, their relations, carers and referrers. This includes things like name, date of birth, gender and ethnicity.
Because of this, we've collected all of these data items together in their own 'demographics' use case, which we'll ask for feedback on as part of a later block. We've listed the demographics data items relevant to this use case in the dropdown below for reference.
View list of demographic data items -
- NHS number
- Family name
- Given name
- Date of birth
- Address
| ID | Name | Definition | Values (where relevant to the data item) |
|---|---|---|---|
| UC003-DE001 | Contact source | Source of reablement contact or referral. | Self, Relative, Friend or neighbour, Early intervention or prevention service (step-up), Health, Education, Housing, Police, Probation, Third sector organisation, Local authority, Independent hospital, Ambulance service, Care regulator, Provider, Advocate, Other, Internal (social worker or another team) |
| UC003-DE002 | Contact date | Date the reablement contact or referral was received. | |
| UC003-DE003 | Contact reason | Clinical and functional reason for reablement contact or referral. | |
| UC003-DE004 | Planned start date | Planned start date of reablement period. | |
| UC003-DE005 | Actual start date | Actual start date of reablement period. | |
| UC003-DE006 | Reason for delay | Reason for delay starting reablement period. | Source: NHS Wales Data Dictionary |
| UC003-DE007 | Planned end date | Expected end date of reablement period. | |
| UC003-DE008 | Actual end date | Date current period of reablement ended. | |
| UC003-DE009 | Target reablement outcome | Specific functional outcome agreed with the person. | |
| UC003-DE010 | Outcome target date | Target date for achieving the reablement outcome. | |
| UC003-DE011 | Activities supported | Activities of daily living where reablement support is being provided. | Personal care – washing and dressing, Meal preparation, Medication management, Mobility and transfers, Domestic tasks, Community access, Other – local code set or Systematized Nomenclature of Medicine – Clinical Terms |
| UC003-DE012 | Weekly hours | Number of reablement support hours per week at commencement. | |
| UC003-DE013 | Provider name | Name of the reablement service provider. | |
| UC003-DE014 | Allocated worker | Name of the key worker or reablement coordinator. | |
| UC003-DE015 | Equipment provided | Equipment or assistive technology provided as part of reablement. | |
| UC003-DE016 | Adaptations identified | Home adaptions identified as required during reablement. | |
| UC003-DE017 | Planned review date | Planned date of formal reablement review. | |
| UC003-DE018 | Actual review date | Actual date of reablement review. | |
| UC003-DE019 | Outcome achievement | Were the outcomes set in your reablement plan achieved. | Fully achieved, Partially achieved, Not achieved |
| UC003-DE020 | Outcomes | Outcomes achieved at the completion of reablement. | Reduced the need for support, Maintained the need for support, Mitigated the need for support, Neither reduced, maintained nor mitigated the need for support |
Ready to tell us what you think?
Use our online feedback form to share your thoughts about the draft data standards.
Case closure
This table sets out the proposed data items, names and definitions for the case closure. The use case includes information that needs to be recorded when a person’s social care record is formally closed.
The table below sets out:
- ID - the unique code we've given each data item. You can use this code when providing feedback so we know which data item you're referring to
- Name - the proposed name of the data item (such as given name, family name or date of birth)
- Definition - the proposed definition of the data item
- Values - where relevant, the options that can be used for the data item (for example, 'yes' or 'no', or a list of local authorities). For some data items, we've linked to an external source of options rather than listing all available values.
We want your feedback on the proposed data items, their names and definitions.
All of the use cases we're asking for your feedback on will also include information about the person, their relations, carers and referrers. This includes things like name, date of birth, gender and ethnicity.
Because of this, we've collected all of these data items together in their own 'demographics' use case, which we'll ask for feedback on as part of a later block. We've listed the demographics data items relevant to this use case in the dropdown below for reference.
View list of demographic data items -
- NHS number
- Family name
- Given name
- Date of birth
| ID | Name | Definition | Values (where relevant to the data item) |
|---|---|---|---|
| UC004-DE001 | Closure date | Date the case was formally closed. | |
| UC004-DE002 | Closure reason (adult) | Reason for case closure in relation to adult services. | Needs met – no ongoing support required, Person declined further support, Moved to another local authority, Admitted to hospital, Residential or nursing placement (self-funded), Deceased, Duplicate record, Other |
| UC004-DE003 | Closure reason (children) | Reason for case closure in relation to children's services. | 1. Service complete, 2. Transferred or moved to another local authority , 3. Step down to preventative services (and no longer requires ongoing care and support), 4. Transferred to the care of adult services , 5. Reached age 18, 6. Refused service , 7. Died , 8. Other |
| UC004-DE004 | Closure decision maker | Name and role of the practitioner authorising closure. | |
| UC004-DE005 | Outcomes at closure | Summary of outcomes achieved against the care and support plan. | |
| UC004-DE006 | Well-being outcomes | Well-being domains assessed at closure. | Physical health, Mental/emotional well-being, Domestic routines, Personal and social relationships, Economic well-being, Suitability of accommodation, Participation in work/education/training, Social inclusion, Carer well-being - SSWB Act 2014 / Care Act 2014 well-being domains |
| UC004-DE007 | Carer situation at closure | Summary of the carer's situation at point of closure. | |
| UC004-DE008 | Death recorded | Whether the person has died. | Yes, No |
| UC004-DE009 | Date of death | Date of death where person is deceased. | |
| UC004-DE010 | Post-closure review date | Date of any planned post-closure review. | |
| UC004-DE011 | Post-closure outcome | Outcome of the post-closure review. | |
| UC004-DE012 | Re-referral date | Date of any re-referral following case closure. | |
| UC004-DE013 | Re-referral reason | Reason for re-referral following case closure. | |
| UC004-DE014 | Signposting at closure | Details of signposting or referral to universal or community services. | |
| UC004-DE015 | Information and advice provided | Summary of information and advice provided at or before closure. | |
| UC004-DE016 | Closure type | The form of closure or cessation of involvement, distinguished from transfer or inactivity. | No further action, Episode closure, Care and support plan closure, Transfer, Safeguarding episode closure, Record enters retention |
| UC004-DE017 | Closure authorisation date | Date on which required management or safeguarding authorisation was given. | |
| UC004-DE018 | Closure authorisation name | Name of authoriser. | |
| UC004-DE019 | Closure statement completed | Whether the statutory or locally required closure statement has been completed. | Yes, No, Not applicable |
| UC004-DE020 | Remaining needs and continuing support | Needs remaining at closure and the arrangements for meeting or mentoring them. | |
| UC004-DE021 | Residual risks and outstanding action | Residual risks at closure and how each risk will be managed and any action going forward. | |
| UC004-DE022 | Closure notifications | People, carers, teams and partner agencies informed of the closure. | |
| UC004-DE023 | Closure communication date | Date closure was communicated to the person and other relevant recipients. | |
| UC004-DE024 | Legal or records hold applies | Whether disposal is suspended because of a legal, inquiry, complaint, investigation, safeguarding or preservation hold. | Yes, No |
| UC004-DE025 | Hold type and reason | Type, scope and reason for the legal or records-management hold. | |
| UC004-DE026 | Hold review or release date | Next review date or formal release date for the hold. | |
| UC004-DE027 | Retention trigger | Event from which the retention period is calculated (start point). | Closure date, Date of birth, Date of death, Adoption order date, Last review date, Other prescribed event |
Give your feedback
Now you've had a chance to review the first block of draft data standards, why not tell us what you think by using our online feedback form?
Microsoft Word form
Please return any feedback provided through the Microsoft Word version of the form to data@socialcare.wales.